On February 7, 2003 Sophia came to make us into a family. She was born two months early weighing only 3 lbs. 11 oz. with a rare genetic syndrome called Taybi-Linder. Her first year and a half was quite a struggle, spending 200 days in intensive care, over multiple hospitalizations. But she amazed and inspired us all with her strength, courage, and determination to stay with us. Fortunately she grew stronger and more resilient.

  She’s an extremely loving and lovable child. Everyone who meets her falls under her spell. She has many handicaps but she is perfect in our eyes. She is not like other children, she is a magical creature. She cannot do many of the things other children her age do, but she has much to give and teach us all.

  Despite her deaf/blindness and lack of mobility, she communicates quite clearly and finds her own ways to do things. And we rejoice at every mini-milestone she achieves. I am so proud of her everyday and consider myself so very lucky to be her mother. She brings such great joy!

–Rebecca


Slide show of photos below:



    
    
    
    
    
First Family Portrait
 
First Days
 
Sophia and Marvin, same size
 
First EEG
 
James and Sophia
 
Sophia at DHMC
 

    
    
    
    
    
Sophia's Six Month Birthday
 
Jim Kisses Sophia
 
Easter Bonnet
 
Easter
 
First Bath
 
Big Mommy Little Baby
 

    
    
    
    
    
Cutie Pie
 
Halloween
 
Belly Dancer
 
Pink Sophia
 
Sophia Angel
 
Tool Time
 
 

    
    
    
    
    
Sophia Holding Daisy
 
Sophia with Present
 
First Birthday
 
First Birthday
 
Valentine's Day
 
Rock Star
 

    
    
    
    
    
Father's Day
 
Sophia Doll
 
Sun Bathing
 
Physical Therapy
 
James and Sophia
 
Bathing Beauty
 
 

    
    
    
    
    
Pool Fun
 
Rock and Roll Sophia
 
I Dream of Sophia
 
Sophia Picasso
 
Nurse Roberta
 
Eeyore
 

    
    
    
    
    
Sophia's Symphony
 
Sophia and Marvin
 
Leopard Girl
 
Sophia with Crown
 
Christmas Sophia
 
Peach Sweater Girls
 

    
    
    
    
    
Super Sophia
 
Third Birthday
 
Elton John's Third Birthday
 
Sophia's Throne
 
Big Sophia, Little Marvin
 
Sophia Grimley

    
    
    
    
    
Discovery Blanket
 
Jello
 
Jello Glow
 
Sophia with Bear and Marvin
 
Smiling Sophia
 
Having a Ball

Enjoying her Throne

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